I forgot about commenting back on the Alports questions you posed. Dr. Cade diagnosed my father-in-law in the late 1960's. My father-in-law was a succesful attorney. Dr. Cade sent them to the only place in the country at that time for transplant-Indianapolis IN. Two transplants failed. He lived as a home hemodialysis patient, father of 4 and full-time private practice attorney for over 30 years. He began to experience hearing loss in his late 20's and was dependent upon hearing aids by his mid 30's. It kept him from accepting an offer to be a Judge locally as he was afraid he would miss something in a trial. My wife has Alports and some hearing loss in the mid-ranges(mild). My eldest son (about to be 13) has Alports. He has fine hearing now but we expect his hearing to begin to decline around the age of 20. He knows this and we take extra efforts to work on his speech articulation, vocabulary, enunciation and feedback awareness as well as good listening/attention habits methods etc. He knows all about his Alports.He is not kept in the dark and therefore not afraid. Dr. Cade saved my father-in-laws life and followed him for over a decade. Because of Dr. Cade all the children in the family were followed closely regarding renal function. My wife has taken care to not over-stress herself or her renal system. Having children was a very difficult decision at many levels and presented special high risk challenges.Thank you for the dedication to science and compassion you exhibit daily. For all of our children you do make a difference.
Thank you Dr.Hsu. Yeah "Elley" is just a nickname some of my friends call me; it's a little bit more original than "Michelle" I suppose. I was born in San Jose, California; however, my parents came to the USA as refugees to escape the Vietnam War. Wow! That must have been a difficult transition at that age! Did/do you miss Taiwan a lot? My father went through a similar experience. My great aunt raised him for most of his life. During the war he had to leave the family behind, but eventually reunited with them in the US.
An important thread is starting on this topic of Ai(harmony)Ki(energy)Do(way). Look at ThomasHuffman's Gainnet page (Aikido of Gainesville). I re-started my Aikido training recently and I am over 40. I also train Iaido (very new to me) I have the privilege of training with my two sons (age 11 and 12). Huffman Sensei and I are discussing an Aikido seminar for Gainnet members. So many seminars are what I call "butt-based" i.e. the participants sit through the seminar and try to learn how to do. It is akin to learning to swim by reading about swimming. So we will do an Aikido seminar which is active and philosophical. We have adult students at Aikido of Gainesville age range from 19 to nearly 60. Look at Tom Huffman's Gainnet profile to fully appreciate the lineage of his teaching. It doesn't even include his service as a US Marine of exemplary accomplishments.
Welcome to GAINnet! Your logo and tag line are nicely done. My speciality is communications technologies though I have a bit of experience in medical products and research (and law enforcement). My friend has a local private medical practice which has a weight loss program. He is also UF instructional MD. Dr. Cade diagnosed my father-in-law with Alports syndrome in the late 1960's. My father-in-law lived successfully on home hemo dialysis for 29 1/2 years while maintaining a law practice, fathering 4 children and 8 grand children. My 12 year old son has Alports. It is an unusual genetic disorder unlikely to be amenable to treatment--transplant is the only treatment. He should be fine until his 30's. As a former deputy sheriff I can relate a story which your product ideas may one day address. I worked with a deputy who while on patrol in uniform (also on the swat team) who had to inject himself 2-4 times/shift. He is in his late 20's and had perfect health until the onset of his diabetes. How could a 'patch' type delivery system (that sounds like what you are looking at) help in such a situation?
Welcome, congrats and I look forward to meeting you